Heroic Family members tough it out-also burn out

Family members who take care of those who otherwise would be in nursing homes or in some other state or federal facility or program are saving taxpayers in Florida an estimated $17.5 billion a year.
Nationally, family caregivers save taxpayers an estimated $350 billion, an amount compared to the annual sales of retail giant Wal-Mart.
Those 2006 figures are the result of a just released study by the AARP which found that family members who provide long-term care have an impact on the economy in many ways beyond the actual work they do in tending to the needs of those with Alzheimer's or other prolonged illnesses often associated with the elderly.
Among other things, family caregivers earn less and produce less because of forced changes in work patterns, according to the AARP Public Policy Institute study, "Valuing the Invaluable: A New Look at the Economic Value of Family Caregiving." One out of five of all workers in this country is looking after the long-term care requirements of a family member - be it a grandparent, parent, sibling, child, aunt or uncle. Most of those caregivers are women who have jobs.
More than 9 of 10 of those involved in the most intense caregiving responsibilities report major changes in their work patterns. At least 8 of 10 say they arrive late to work, leave early or take time off during the day to tend to family members needing long-term care. Some 4 of 10 listed taking a leave of absence and nearly that many included shifting from full-time to part-time work among the changes they have made to carry out their caretaking duties.
That means reduced job security, loss of employment benefits like health insurance, lower retirement savings and Social Security earnings, the study points out. In addition, it is estimated that U.S. businesses lose as much as $33 billion a year in productivity because of the situation.
No small consideration is the fact that the health of the caregivers themselves, because of those responsibilities, is more likely to suffer chronic health problems and incur more medical debt than non-caregivers. In fact, the AARP study notes that the main factor in the decision of the elderly to enter or be placed in a nursing facility is caregiver burn out.
"Family caregivers are the unsung heroes of long-term care in our state," said Lori Parham, director of AARP in Florida where 2.8 million men and women are members of the organization for those 50 years of age or older. Because what caregivers do can delay or even prevent more costly nursing home care, they are sparing state taxpayers "staggering expenditures" of scarce public resources like Medicaid dollars ($16 billion budgeted for Florida in the 2007-2008 fiscal year), she added.
Therefore, finding ways for the government to give some support to those providing family care is one of the goals of AARP in Florida, noted Parham, because it not only would help older folks and their caregivers but also would aid businesses and taxpayers.
Next year, she said, AARP in Florida will launch a multi-year campaign to help families plan early for long-term care by educating them about where to find critical information about illnesses, support groups, high quality care options, and possible financial aid.
Parham said AARP Florida will be monitoring pilot programs in Orlando and Miami, called Florida Senior Care (FSC), under which Medicaid will finance long-term care through a HMO-type organizations for those who choose those options.

Adon Taft is a resident of Brooksville. If you have questions about any issues connected with aging, except medical conditions, please write to Life to the Fullest, Hernando Today, 15299 Cortez Blvd., Brooksville, Fla. 34613, or send e-mail to ataft@miamiherald.com. Please include your name and address.

 



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